paris has lupus org

Paris, Hilton & Lupus... Paris has Lupus Org.

Who would have thought that Paris, the name Hilton, and lupus could all be associated?

Members of the Hilton family have been involved with lupus issues in the past, as can be seen here in a fundraising event for Lupus LA.

And many lupus events have occurred at a hotel with the Hilton name - but I'm still not sure what the so-called American celebrity, Paris Hilton, actually does.

What I do know, is that lupus affects people from all around the world and our friends in France have support too.

Paris, and France, have a lupus organization:

Association Lupus France (this page can be translated)
7 rue de Rocroy 75010 Paris
Tél : 01 45 26 33 27 et 06 07 35 48 69

It would be great to hear more of how our friends around the world are dealing with lupus. My best wishes to those in Paris and France and congratulations on your efforts.

Vous remercier, vous et ce qui concerne - Geoff

Qui aurait pensé que Paris, le nom de Hilton, et le lupus peuvent tous être associés?

Les membres de la famille Hilton ont été impliqués dans le lupus dans le passé, comme on peut le voir ici dans un événement de collecte de fonds pour Lupus LA. Lupus et de nombreux événements ont eu lieu à l'hôtel Hilton avec le nom - mais je ne suis toujours pas sûr de ce que les soi-disant célébrité Paris Hilton fait.

Ce que je sais, c'est que le lupus touche des personnes de partout dans le monde et nos amis en France, ont trop de soutien. Paris et la France, ont un lupus organisation:

Association Lupus France - 7 rue de Rocroy 75010 Paris
Tél: 01 45 26 33 27 et 06 07 35 48 69

Il serait génial d'entendre plus de la manière dont nos amis du monde entier font face avec le lupus. Mes meilleurs voeux à ceux de Paris et la France, et félicitations pour vos efforts. Vous remercier, vous et ce qui concerne - Geoff

lupus barcelona - world lupus day

I'd like to share these photographs with you.

Our friends from Spain, The Associació Catalana de Lupus E.G, celebrated World Lupus Day with 'I Walk The Barcelona' for lupus awareness.

It was a wonderful effort - imagine how many people saw that World Lupus Day banner!

If you have any photographs from World Lupus Day, or other events, I'd be happy to post them here.




For more information about Associació Catalana de Lupus E.G:
Diputación 227 Pral .1ª B08011 Barcelona
Tel. 93 453 62 14
acleg@hotmail.com
http://acleg.entitatsbcn.net/

Me gustaría compartir con ustedes estas fotografías. Nuestros amigos de España, la Associació Catalana de Lupus EG, que se celebra el Día Mundial de Lupus con 'El camino de Barcelona "para el lupus conciencia.

Fue un maravilloso esfuerzo - imaginar cuánta gente ha visto que el Día Mundial de Lupus bandera! Si usted tiene alguna de las fotografías del Día Mundial de Lupus, u otros eventos, me gusto publicaremos más información sobre here.

For Associació Catalana de Lupus EG: Diputación 227 Pral .1 ª B08011 Barcelona
Tel. 93 453 62 14
acleg@hotmail.com
http://acleg.entitatsbcn.net/

sensational lupus awareness in indonesia

I'd like to share with you a wonderful article written by Dian Syarief of
Care for Lupus Indonesia. With World Lupus Day in mind, Dian wrote this article that was published in the Jakarta Post newspaper.

Jakarta is a city of over 8 million people, and in a country of over 230 million citizens. It's a wonderful achievement of Dian to raise such awareness and inform so many people of how lupus affects so many people, not only in Indonesia, but all around the world.

To read the article, click the link above or follow this link:

http://www.thejakartapost.com/news/2009/05/10/lupus-how-make-friends-with-enemy.html

I've listed more information about Care For Lupus (Indonesia) on previous posts here.

Thank You Dian!

happy world lupus day

Our one day of the year has finally arrived and I'm wishing everyone a happy and healthy World Lupus Day.

I've added a link courtesy of The Lupus Foundation of America who have listed global events for World Lupus Day on the WLD website: Click here to see what others around the world have planned.

Regards as always and many thanks to everyone around the world trying to make a difference, Geoff.

world lupus day - spain

I'd like you know about a wonderful effort from our friends in Spain.

The Lupus Association Catalana invites everyone to celebrate the May 10 World Day for Lupus with "I Walk the Lupus" in Barcelona.

You're are encouraged to come with family, friends and acquaintances.

The task is to make disclosure, as in the rest of the world.

The meeting point is at 10:30 h in Paseo de Gracia. (At La Pedrera in C / Provenza). There's a tour of the Avenida Diagonal, to the Holy Family, where then they'll proceed to read the Manifesto of the DML.

Suitable material: sport shoes, visor, white shirt and carrying essentials that you need - ie: photo protective cream. It's not to be missed if you're in this part of the world on WLD.

To find out more about the Lupus Association Catalana, click here: http://acleg.entitatsbcn.net

I'll post the details in Spanish below, as we now have many people from Spanish speaking countries visiting this blog.

"LA ASOCIACIÓN CATALANA LUPUS E.G. Os invita a conmemorar el 10 de mayo el Día Mundial del Lupus con la "I Caminata por el Lupus" en Barcelona, te animamos a que vengas con familiares, amigos y conocidos. El cometido es hacer divulgación como en el resto del mundo. Punto de encuentro a las 10:30h en Paseo de Gracia. ( en la Pedrera en la C / Provenza). Recorrido por la Avenida Diagonal, hasta llegar a la Sagrada Familia, en donde se procederá a la lectura del Manifiesto del DML. Material adecuado las zapatillas de deporte, visera, imprescindible llevar camiseta blanca y a los que os haga falta crema foto protectora. ¡Os esperamos! Associació Catalana de Lupus E.G. Diputación 227 Pral.1ª B 08011 Barcelona, España. Tel. 93 453 62 14 acleg@hotmail.com http://acleg.entitatsbcn.net"

My sincere regards to all my Spanish friends and wishing you around the world, all the best for World Lupus Day.

Geoff (Jeff) Thomas.

world lupus day - the history behind it

Yes... World Lupus Day is this Sunday - May 10!

But how did it all begin?

The first-ever World Lupus Day observance occurred on Monday, May 10, 2004, coinciding with the 7th International Congress on SLE and Related Conditions in New York.

Sandra C. Raymond, President of the Lupus Foundation of America, and Brian Hanner, Director of Lupus UK (United Kingdom), were co-chairs for this inaugural worldwide awareness event.

World Lupus Day was developed to focus on the need for improved patient health-care service, increased research into the causes of and a cure for lupus, enhanced physician diagnosis and treatment of lupus, and better epidemiological data on lupus globally.

An international steering committee representing lupus organizations from nine countries met in Eaton (UK) on January 23 and 24 (2004) to finalize plans for World Lupus Day activities around the globe.

An Australian friend of mine, Karen, was on the steering committee:

" What happened was that we all went over to Eaton to actually agree on the wording of the proclamation, the emblem, best way to get publicity and support etc etc. This was after months of hard work prior to the meeting sending emails back and forth. Who likes what etc.

After the meeting we went home, and then May 10 was the launch date all over the world and the official launch was in NY at the Conference."

Sincere thanks to all those who had the foresight to establish a day 'of our own' and for all your hard work - it won't be forgotten.

Regards as always, Geoff (Jeff) Thomas.